Identifying the psychological challenges of mothers with a chronically ill child: A phenomenological study

Rezaei, Mahboobeh; Khodabakhshi-koolaee, Anahita; Falsafinejad, Mohammad Reza; Sanagoo, Akram

doi:10.22062/jqr.2020.90999

Authors

¹ MSc in Counseling, Department of Counseling, School of Human Science, Science & Research Branch, Islamic Azad University, Tehran, Iran

² Assistant professor, Department of Psychology and Education, School of Humanities, Khatam University, Tehran, Iran

³ Associate professor, Department of Measurement, School of Psychology and Education, Allameh Tabataba’i University, Tehran, Iran

⁴ Associate Professor, Department of Nursing, Nursing Research Center, Golestan University of Medical Sciences, Gorgan, Iran

https://doi.org/10.22062/jqr.2020.90999

Abstract

Introduction: Having a child with a chronic mental illness puts a lot of psychological pressure on family members, especially the mother who takes care of the child. Therefore, this study aimed to identify the psychological challenges of mothers of children with chronic diseases in Karaj.
Methods: This study employed a descriptive phenomenological approach using a purposive sampling method and was conducted in 2017. The data were collected through semi-structured interviews with the participants who were mothers of children with a chronic mental illness at the Rehabilitation, Treatment, and Care Center for Neurological and Psychiatric Patients in Mehrafarin, Karaj, of whom 17 were selected to take the interviews. The collected data were analyzed using Colaizzi's seven-step method for data analysis.
Results: The results of the study showed that the psychological challenges faced by mothers with chronically ill children can be divided into five main categories: Feeling uncomfortable at home, feeling of constant fear, mental fatigue caused by continuous maternal care, social stigma and restricted interactions, and insufficient financial and support resources.
Conclusion: Mothers who have to care for a child with a chronic mental illness are exposed to substantial burden of care and psychological pressure. Some of these psychological challenges are rooted in individual and family issues, and others are rooted in social conditions and seeking support for the patient. Therefore, it seems that the teaching of psychological interventions to mothers should be individually and socially oriented to reduce the psychological challenges and pressures tolerated by mothers with chronically ill children. Of course, concerning objective burden and seeking support, benefiting from insurance and other health services can reduce the problems faced by these mothers.

Keywords

References

1. American Psychiatric Association. Diagnostic and statistical manual of mental disorders (DSM-5). [cited 2019 Oct] Available from: https://www.psychiatry.org/psychiatrists/practice/dsm. 2. Hosseini H, Akbari M, Mohamadi J. Effects of cognitive-behavioral therapy on positive symptoms of schizophrenia. Journal of Mazandaran University of Medical Sciences 2013; 23(107): 29-37. [In Persian]. 3. Khodabakhshi Koolaee A, Ebrahim Baighi H, Navidian A. Effects of communication skills training on aggression and quality of life of male patients with a chronic mental illness. Journal of Client-Centered Nursing Care 2016; 2(1): 3-10. 4. Khatibi A. Survey of Females’ Attitude toward factors affecting the family’s strength. Journal of Women and Family Studies 2016; 3(1): 59-92. doi: 10.22051/jwfs.2015.2196. [In Persian]. 5. Puntis M. Skills for communicating with patients. Ann R Coll Surg Engl 2006; 88(1): 85-6. doi: 10.1308/003588406X83159c. 6. Rahdari M, Modarres Gharavi M, Tabibi Z. On the relationship between personality traits and level of expressed emotion in mothers of schizophrenic patients. Journal of Fundamentals of Mental Health 2010; 12(45): 438-47. [In Persian]. 7. Kilbourne AM, Barbaresso MM, Lai Z, Nord KM, Bramlet M, Goodrich DE, et al. Improving physical health in patients with chronic mental disorders: 12-month results from a randomized controlled collaborative care trial. J Clin Psychiatry 2017; 78(1): 129-37. doi: 10.4088/JCP.15m10301. 8. Roberge P, Hudon C, Pavilanis A, Beaulieu MC, Benoit A, Brouillet H, et al. A qualitative study of perceived needs and factors associated with the quality of care for common mental disorders in patients with chronic diseases: The perspective of primary care clinicians and patients. BMC Fam Pract 2016; 17(1): 134. doi: 10.1186/s12875-016-0531-y. 9. Haber J, Krainovich-Miller B, McMahon AL. Comprehensive Psychiatry Nursing. 5th ed. United States: Mosby; 1997. 10. Bryant W, Fieldhouse J, Bannigan K. Creek's Occupational Therapy and Mental Health. 5th ed. UK: Churchill Livingstone; 2014. 11. Taylor TL, Killaspy H, Wright C, Turton P, White S, Kallert TW, et al. A systematic review of the international published literature relating to the quality of institutional care for people with long term mental health problems. BMC Psychiatry 2009; 9:55. doi: 10.1186/1471-244X-9-55. 12. Noori Khajavi M, Ardeshirzadeh M, Dolatshahi B, Afgheh S. Comparative evaluation of psychological burden in caregivers of patients with chronic schizophrenia and caregivers of patients with chronic bipolar disorder. Iranian Journal of Psychiatry and Clinical Psychology 2008; 14(1): 80-4. [In Persian]. 13. Tavallaie SA, Assari SH, Najafi M, Habibi M, Ghanei M. Study of sleep ‎quality in chemical-warfare- agents exposed veterans. Journal of Military Medicine 2005; ‎‎6(4): 241-8. [In Persian]. ‎ 14. Girard A, Hudon C, Poitras ME, Roberge P, Chouinard MC. Primary care nursing activities with patients affected by physical chronic disease and common mental disorders: A qualitative descriptive study. J Clin Nurs 2017; 26(9-10): 1385-94. doi: 10.1111/jocn.13695. 15. Narusyte J, Ropponen A, Alexanderson K, Svedberg P. Disability pension due to mental diagnoses: the role of psychiatric disorders and chronic fatigue. European Journal of Public Health 2013; 23(Suppl 1):ckt123-093. 16. Ghoreishi SA, Mollaei R, Naseri M. Quality of life in patients inhabiting in chronic mental patients care center. Journal of Kermanshah University of Medical Sciences 2014; 17(11):e74313. doi: 10.22110/jkums.v17i11.1312. 17. Weimand BM, Hall‐Lord ML, Sällström C, Hedelin B. Life‐sharing experiences of relatives of persons with severe mental illness–a phenomenographic study. Scand J Caring Sci 2013; 27(1): 99-107. doi: 10.1111/j.1471-6712.2012.01007.x. 18. Raj EA, Shiri S, Jangam KV. Subjective burden, psychological distress, and perceived social support among caregivers of persons with schizophrenia. Indian Journal of Social Psychiatry 2016; 32(1): 42-9. 19. Kim IH. The relationship between family burden and mental health service needs of family for home-based chronic mental patients in community. J Agric Med Community Health 2008; 33(3): 269-78. 20. Hyun MS. A study of the relation between perceived family support and social adjustment of discharged patients with a chronic mental illness. The Journal of Nurses Academic Society 1992; 22(3): 352-61. 21. Muschalla B, Linden M. Workplace phobia, workplace problems, and work ability among primary care patients with chronic mental disorders. J Am Board Fam Med 2014; 27(4): 486-94. 22. Theunissen J, Duurkoop P. Reaction on the aftermath of the reduction in inpatient care and treatment II: cross-sectional study relating to the health, the need for care, the quality of life, social functioning and the integration in society of chronic mental patients in Amsterdam'. reply to Hovens and Loonen. Tijdschr Psychiatr 2013; 55(5):388. [In Dutch]. 23. Shamsaei F, Mohammadkhan Kermanshahi S, Vanaki Z. Survey of family caregiver needs of patients with bipolar disorder. Avicenna Journal of Clinical Medicine 2010; 17(3): 57-63. [In Persian]. 24. Akbari M, Alavi M, Irajpour A, Maghsoudi J. Challenges of family caregivers of patients with mental disorders in Iran: A narrative review. Iran J Nurs Midwifery Res 2018; 23(5): 329-37. doi: 10.4103/ijnmr.IJNMR_122_17. 25. Cheraghi F, Shamsaei F, Riazi H. Survey of nursing and care needs of patients with mental disorders than of hospital discharge. Avicenna J Nurs Midwifery Care 2010; 18(2): 15-25. [In Persian]. 26. Streubert HJ, Carpenter DR. Qualitative Research in Nursing: Advancing the Humanistic Imperative. 5nd ed. USA: LWW 2010. 27. Koolaee AK, Etemadi A. The outcome of family interventions for the mothers of schizophrenia patients in Iran. nternational Journal of Social Psychiatry 2010; 56(6): 634-46. doi.org/10.1177/0020764009344144. 28. Emami Sigaroodi A, Dehghan Nayeri N, Rahnavard Z, Nori Saeed A. Qualitative research methodology: phenomenology. Journal of Holistic Nursing and Midwifery 2012; 22(2): 56-63. [In Persian]. 29. Shosha GA. Employment of Colaizzi's strategy in descriptive phenomenology: A reflection of a researcher. European Scientific Journal 2012; 8(27): 31-43. 30. Nadem Boieni M, Ramezani T, Khodadadi N, Moosavi Lotfi SM, Haghdoost AA, Yeganeh Rasteh Kenari M. Attitude of schizophrenic patients' care givers about their method of patient caring â at home. Journal of Holistic Nursing And Midwifery 2013; 23(1): 54-62. [In Persian]. 31. Caqueo-Urízar A, Gutiérrez-Maldonado J, Ferrer-García M, Peñaloza-Salazar C, Richards-Araya D, Cuadra-Peralta A. Attitudes and burden in relatives of patients with schizophrenia in a middle-income country. BMC Family Practice 2011; 12(1):101. doi: 10.1186/1471-2296-12-101. 32. Zahid MA, Ohaeri JU. Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia. BMC Psychiatry 2010; 10:71. doi: 10.1186/1471-244X-10-71.

Journal of Qualitative Research in Health Sciences

Identifying the psychological challenges of mothers with a chronically ill child: A phenomenological study

References

References

Volume 9, Issue 1
May 2020
Pages 18-27

Identifying the psychological challenges of mothers with a chronically ill child: A phenomenological study

References

References

Volume 9, Issue 1May 2020Pages 18-27

Volume 9, Issue 1
May 2020
Pages 18-27