Journal of Qualitative Research in Health Sciences

Authors

Abstract

Abstract
 
Introduction: Pregnancy is a challenging period for any woman; it is a more sensitive and challenging time for women living with human immunodeficiency virus (HIV). HIV-infected women are facing a sense of stigma, discrimination, and social exclusion during pregnancy. However, little is known about the experience of pregnancy in HIV-positive women. The present study aimed to explore the lived experiences in HIV-positive pregnant women.
Method: This was a qualitative study with hermeneutic phenomenological approach. 12 HIV-infected pregnant women who referred to counseling center for behavioral diseases in Imam Khomeini Hospital, Tehran, Iran, in 2014, were recruited through purposive sampling. Data were collected through semi-structured interviews, and the richness of data was achieved after 16 interviews during 40 to 90 minutes with participants. The data were analyzed using Diekelmann method.
Results: Participants were between 22-39 years of age. After data analysis, the main theme (renewal of stigma) and 2 subthemes (blame and rejection) emerged.
Conclusion: Although the experience of pregnancy in HIV-positive women was associated with renewal of stigma, pregnancy provides for blame and rejection. The findings of this study emphasize on the necessity of integrating training and education programs to reduce the stigma of HIV and acquired immunodeficiency syndrome (AIDS).

Keywords

  1. Tavakol M, Nikayin D. Stigmatization, doctor-patient relationship, and curing HIV/AIDS patients. Bioethics Journal 2012; 2(5): 11-43. [In Persian].
  2. Tavakol M, Nikayin D. Stigmatization, doctor-patient relationship, and curing HIV/AIDS patients. Bioethics Journal 2012; 2(5): 11-43. [In Persian].
  3. Jahangiri L, Jahangiri H. AIDS stigma: Legal support AIDS patients in Iran and its effects on public health. Payesh Health Monit 2016; 15(6): 717-20. [In Persian].
  4. Jahangiri L, Jahangiri H. AIDS stigma: Legal support AIDS patients in Iran and its effects on public health. Payesh Health Monit 2016; 15(6): 717-20. [In Persian].
  5. Nikoo Seresht Z, Rimaz S, Asadi lari M, Nedjat S, Merghati Khoie E, Motevallian S A, et al. The relationship between quality of life and social capital amongst people living with HIV/AIDS attending the Imam Khomeini hospital consultation center for clients with risky behaviors in Tehran- 2011. J Sch Public Health Inst Public Health Res 2014; 11(3): 17-28. [In Persian].
  6. Nikoo Seresht Z, Rimaz S, Asadi lari M, Nedjat S, Merghati Khoie E, Motevallian S A, et al. The relationship between quality of life and social capital amongst people living with HIV/AIDS attending the Imam Khomeini hospital consultation center for clients with risky behaviors in Tehran- 2011. J Sch Public Health Inst Public Health Res 2014; 11(3): 17-28. [In Persian].
  7. D'Auria JP, Christian BJ, Miles MS. Being there for my baby: Early responses of HIV-infected mothers with an HIV-exposed Infant. J Pediatr Health Care 2006; 20(1): 11-8. [DOI:10.1016/j.pedhc.2005.08.008]
  8. D'Auria JP, Christian BJ, Miles MS. Being there for my baby: Early responses of HIV-infected mothers with an HIV-exposed Infant. J Pediatr Health Care 2006; 20(1): 11-8. [DOI:10.1016/j.pedhc.2005.08.008]
  9. Faria ER, Goncalves TR, Carvalho FT, Lopes RD, Piccinini CA. Coping strategies among Brazilian pregnant women living with HIV. Paidea (Ribeirao Preto) 2014; 24(57): 67-74. [DOI:10.1590/1982-43272457201409]
  10. Faria ER, Goncalves TR, Carvalho FT, Lopes RD, Piccinini CA. Coping strategies among Brazilian pregnant women living with HIV. Paidea (Ribeirao Preto) 2014; 24(57): 67-74. [DOI:10.1590/1982-43272457201409]
  11. Montgomery KS. Childbirth education for the HIV-positive woman. J Perinat Educ 2003; 12(4): 16-26. [DOI:10.1891/1058-1243.12.4.16]
  12. Montgomery KS. Childbirth education for the HIV-positive woman. J Perinat Educ 2003; 12(4): 16-26. [DOI:10.1891/1058-1243.12.4.16]
  13. Minkoff H. Human immunodeficiency virus infection in pregnancy. Obstet Gynecol 2003; 101(4): 797-810. https://doi.org/10.1016/S0029-7844(03)00051-6 [DOI:10.1097/00006250-200304000-00038]
  14. Minkoff H. Human immunodeficiency virus infection in pregnancy. Obstet Gynecol 2003; 101(4): 797-810. https://doi.org/10.1016/S0029-7844(03)00051-6 [DOI:10.1097/00006250-200304000-00038]
  15. Sanders LB. Women's voices: The lived experience of pregnancy and motherhood after diagnosis with HIV. J Assoc Nurses AIDS Care 2008; 19(1): 47-57. [DOI:10.1016/j.jana.2007.10.002]
  16. Sanders LB. Women's voices: The lived experience of pregnancy and motherhood after diagnosis with HIV. J Assoc Nurses AIDS Care 2008; 19(1): 47-57. [DOI:10.1016/j.jana.2007.10.002]
  17. Makgahlela MW. The effect of stigma on HIV and AIDS testing uptake among pregnant women in Limpopo [MSc Thesis]. Limpopo, South Africa University of Limpopo; 2010.
  18. Makgahlela MW. The effect of stigma on HIV and AIDS testing uptake among pregnant women in Limpopo [MSc Thesis]. Limpopo, South Africa University of Limpopo; 2010.
  19. Behboodi-Moghadam Z, Nikbakht-Nasrabadi A, Ebadi A, Esmaelzadeh-Saeieh S, Mohraz M. Fertility desire in Iranian women with HIV: A qualitative study. Iran J Public Health 2015; 44(8): 1126-34.
  20. Behboodi-Moghadam Z, Nikbakht-Nasrabadi A, Ebadi A, Esmaelzadeh-Saeieh S, Mohraz M. Fertility desire in Iranian women with HIV: A qualitative study. Iran J Public Health 2015; 44(8): 1126-34.
  21. Debeko K, Seme A. Sexual and reproductive health needs and preferences of people living with HIV. AIDS in Southern Nations Nationalities and Peoples Region [MPH Thesis]. Addis Ababa, Ethiopia: Addis Ababa University; 2007.
  22. Debeko K, Seme A. Sexual and reproductive health needs and preferences of people living with HIV. AIDS in Southern Nations Nationalities and Peoples Region [MPH Thesis]. Addis Ababa, Ethiopia: Addis Ababa University; 2007.
  23. Speziale HS, Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative. Philadelphia, PA: Lippincott Williams & Wilkins; 2011.
  24. Speziale HS, Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative. Philadelphia, PA: Lippincott Williams & Wilkins; 2011.
  25. Holloway I, Wheeler S. Qualitative research in nursing and healthcare. Hoboken, NJ: John Wiley & Sons; 2013.
  26. Holloway I, Wheeler S. Qualitative research in nursing and healthcare. Hoboken, NJ: John Wiley & Sons; 2013.
  27. Diekelmann N, Allen D, Tanner CA. The NLN criteria for appraisal of baccalaureate programs: A critical hermeneutic analysis. Washington, DC: National League for Nursing; 1989.
  28. Diekelmann N, Allen D, Tanner CA. The NLN criteria for appraisal of baccalaureate programs: A critical hermeneutic analysis. Washington, DC: National League for Nursing; 1989.
  29. Lincoln YS, Guba EG. Establishing trustworthiness. In: Lincoln YS, Guba EG, Editors. Naturalistic inquiry. Thousand Oaks, CA: SAGE; 1985. p. 289-331.
  30. Lincoln YS, Guba EG. Establishing trustworthiness. In: Lincoln YS, Guba EG, Editors. Naturalistic inquiry. Thousand Oaks, CA: SAGE; 1985. p. 289-331.
  31. Cooper D, Bracken H, Myer L. Reproductive intentions and choices among HIV-infected individuals in Cape Town, South Africa [Report]. Cape Town, South Africa: Women's Health Research Unit; 2005.
  32. Cooper D, Bracken H, Myer L. Reproductive intentions and choices among HIV-infected individuals in Cape Town, South Africa [Report]. Cape Town, South Africa: Women's Health Research Unit; 2005.
  33. Feldman R, Maposhere C. Safer sex and reproductive choice: Findings from "positive women: Voices and choices" in Zimbabwe. Reprod Health Matters 2003; 11(22): 162-73. [DOI:10.1016/S0968-8080(03)02284-5]
  34. Feldman R, Maposhere C. Safer sex and reproductive choice: Findings from "positive women: Voices and choices" in Zimbabwe. Reprod Health Matters 2003; 11(22): 162-73. [DOI:10.1016/S0968-8080(03)02284-5]
  35. Cooper D, Harries J, Myer L, Orner P, Bracken H, Zweigenthal V. "Life is still going on": reproductive intentions among HIV-positive women and men in South Africa. Soc Sci Med 2007; 65(2): 274-83. [DOI:10.1016/j.socscimed.2007.03.019]
  36. Cooper D, Harries J, Myer L, Orner P, Bracken H, Zweigenthal V. "Life is still going on": reproductive intentions among HIV-positive women and men in South Africa. Soc Sci Med 2007; 65(2): 274-83. [DOI:10.1016/j.socscimed.2007.03.019]
  37. Gogna ML, Pecheny MM, Ibarlucia I, Manzelli H, Lopez SB. The reproductive needs and rights of people living with HIV in Argentina: Health service users' and providers' perspectives. Soc Sci Med 2009; 69(6): 813-20. [DOI:10.1016/j.socscimed.2009.06.002]
  38. Gogna ML, Pecheny MM, Ibarlucia I, Manzelli H, Lopez SB. The reproductive needs and rights of people living with HIV in Argentina: Health service users' and providers' perspectives. Soc Sci Med 2009; 69(6): 813-20. [DOI:10.1016/j.socscimed.2009.06.002]
  39. Rahmati F, Niknami S, Amin F, Ravari A. HIV/AIDS patients' experiences about stigma: A Qualitative Study. J Qual Res Health Sci 2012; 1(2): 71-80. [In Persian].
  40. Rahmati F, Niknami S, Amin F, Ravari A. HIV/AIDS patients' experiences about stigma: A Qualitative Study. J Qual Res Health Sci 2012; 1(2): 71-80. [In Persian].
  41. Parvin S, Eslamian A. The lived experience of social relations in women living with HIV. Journal Women in Development & Politics 2015; 12(2): 207-28. [In Persian].
  42. Parvin S, Eslamian A. The lived experience of social relations in women living with HIV. Journal Women in Development & Politics 2015; 12(2): 207-28. [In Persian].
  43. Steward WT, Herek GM, Ramakrishna J, Bharat S, Chandy S, Wrubel J, et al. HIV-related stigma: Adapting a theoretical framework for use in India. Soc Sci Med 2008; 67(8): 1225-35. [DOI:10.1016/j.socscimed.2008.05.032]
  44. Steward WT, Herek GM, Ramakrishna J, Bharat S, Chandy S, Wrubel J, et al. HIV-related stigma: Adapting a theoretical framework for use in India. Soc Sci Med 2008; 67(8): 1225-35. [DOI:10.1016/j.socscimed.2008.05.032]
  45. Sassanid L, Naji A, Abedi HA, Taeri K. The experience of social stigma in aids patients: A phenomenological study. J Sabzevar Univ Med Sci 2014; 20(4): 487-95. [In Persian].
  46. Sassanid L, Naji A, Abedi HA, Taeri K. The experience of social stigma in aids patients: A phenomenological study. J Sabzevar Univ Med Sci 2014; 20(4): 487-95. [In Persian].
  47. Turan JM, Miller S, Bukusi EA, Sande J, Cohen CR. HIV/AIDS and maternity care in Kenya: How fears of stigma and discrimination affect uptake and provision of labor and delivery services. AIDS Care 2008; 20(8): 938-45. [DOI:10.1080/09540120701767224]
  48. Turan JM, Miller S, Bukusi EA, Sande J, Cohen CR. HIV/AIDS and maternity care in Kenya: How fears of stigma and discrimination affect uptake and provision of labor and delivery services. AIDS Care 2008; 20(8): 938-45. [DOI:10.1080/09540120701767224]