Lived Experience of Children with Heart Disease and Cancer about Death Anxiety: A Phenomenological Study

Document Type: Original Article

Authors

1 PhD Student in Health Psychology, Department of Psychology, School of Psychology and Education, Karaj Branch, Kharazmi University, Karaj, Iran

2 Associate Professor, Department of Clinical Psychology, Faculty of Psychology and Education, Kharazmi University, Tehran, Iran

Abstract

Introduction: Death anxiety is one of the ultimate anxieties of humankind, which is caused by consciousness of mortality and inevitability of death. Considering the fact that knowledge of death and experience of death anxiety arise from childhood, the objective of this study was to explore the experiences of children with heart disease and cancer about death anxiety.
Methods: This study was conducted qualitatively with a phenomenological approach. The participants were 15 children with cancer and congenital heart disease (CHD) at Ali Asghar (AS), Modarres, and Rasoul-e-Akram hospitals in Tehran in 2018, whose information was collected through semi-structured interviews. The participants were selected via purposive sampling and the data were analyzed by Colaizzi's method.
Results: The analysis of the data led to the development of a main category called anxiety, which consists of six subcategories including imaginary manifestations of death, loneliness and nothingness, fear and anxiety, unknowns, religious beliefs, and sorrow for others.
Conclusion: The investigation of the experiences of children showed that death anxiety is a very important concept in the minds of children with heart disease and cancer and it has different aspects. Therefore, proper knowledge of the various aspects of death anxiety can lead to the provision of appropriate educational materials and the use of various sources for reducing the level of anxiety experienced by children.

Keywords

References

 
  1. Ghasemiannejad-Jahromi A, Mehrabizadeh-Honarmand M, Hashemi SE, Beshlideh K, Khojasteh-Mehr R. The investigation of near-death experiences, and necessity of awareness about its elements. Journal of Qualitative Research in Health Science 2019; 7(3):337-48. [In Persian]
  2. Sherman DW, Norman R, McSherry CB. Acomparison of death anxiety and quality of
     life of patients with advanced cancer or AIDS and their family caregivers. J Assoc Nurses AIDS Care 2019; 21(2):99-112. doi: 10.1016/j.jana.2009.07.007.
  3. Ireland M, Malgady RG. Thematic instrument for measuring death anxiety in children (TIMDAC). J Pediatr Nurs 1999; 14(1):28-37. doi:10.1016/S0882-5963(99)80057-8.
  4. Vianello R, Marin ML. Children's understanding of death. Early Child Development and Care 1989; 46(1):97-104. doi:10.1080/0300443890460109.
  5. Panagiotaki G, Nobes G, Ashraf A, Aubby H. British and Pakistani children's understanding of death: cultural and developmental influences. Br J Dev Psychol 2015; 33(1):31-44. doi: 10.1111/bjdp.12064.
  6. Moore CC, Williamson JB. The Universal Fear of Death and the Cultural Response. In: Bryant CD. Handbook of Death and Dying. California: Sage Publications; 2003.
  7. Brown MR, Sourkes B. Psychotherapy in pediatric palliative care. Child Adolesc Psychiatr Clin N Am 2006; 15(3):585-96.
  8. Theunissen JM, Hoogerbrugge PM, van Achterberg T, Prins JB, Vernooij-Dassen 
  9. MJ, van den Ende CH. Symptoms in the palliative phase of children with cancer. Pediatr Blood Cancer 2007; 49(2):160-5. doi: 10.1002/pbc.21042.
  10. Yaloom AD. Existential Psychotherapy. 6th ed. Translated by Habib S. Tehran: Ney Pub; 2015. [In Persian].
  11. Feist J, Feist G, Roberts TA. Theory of Personality. 8th ed. USA: McGraw-Hill Education; 2012.
  12. Motamedi GH. Human & Death. 4th ed. Tehran: Markaz; 2017. [In Persian].
  13. Vilhauer RP. A qualitative study of the experiences of women with metastatic breast cancer. Palliat Support Care 2008; 6(3):249-58. doi: 10.1017/S1478951508000382.
  14. Fathi A, Bahadoram M, Amani F. Epidemiology of childhood cancer in northwest iran. Asian Pac J Cancer Prev 2015; 16(13):5459-62. doi: 10.7314/apjcp.2015.16.13.5459.
  15. Ward E, DeSantis C, Robbins A, Kohler B, Jemal A. Childhood and adolescent cancer statistics. CA Cancer J Clin 2014; 64(2):83-103. doi: 10.3322/caac.21219.
  16. Patton MQ. Qualitative Research and Evaluation Methods. India: SAGE Publications; 2002.
  17. Bering J. The Belief Instinct: The Psychology of Souls, Destiny, and the Meaning of Life. USA: W. W. Norton; 2012.
  18. Astuti RE, Harris PL. Understanding mortality and the life of the ancestors in rural Madagascar. Cogn Sci 2008; 32(4):713-40. doi:10.1080/03640210802066907.
  19. Bering JM, Bjorklund DF. The natural emergence of reasoning about the afterlife as a developmental regularity. Dev Psychol 2004; 40(2):217-33. doi: 10.1037/0012-1649.40.2.217.
  20. Harris PL, Richert RA. William James, ‘The World Of Sense ’ and Trust in Testimony. Mind & Language 2008; 23(5):536-51.
  21.  Sinoff G. Thanatophobia (death anxiety) in the elderly: the problem of the child’s inability to assess their own parent’s death anxiety state. Front Med (Lausanne) 2017; 4:11. doi: 10.3389/fmed.2017.00011.
  22. Halpem E, Palic L. Developmental changes in death anxiety in childhood. Journal of Applied Developmental Psychology 1984; 5(2):163-72. doi:10.1016/0193-3973(84)90015-7.
  23. Klein M. A contribution to the theory of anxiety and guilt. International Journal of Psychoanalysis 1948; 29:114-23.
  24. Crain W. Theories of Development: Concepts and Applications. 6th ed. London: Routledge; 2010.
  25. Kellehear A. A Social History of Dying. UK: Cambridge University Press; 2007.
  26. Wong PT, Reker GT, Gesser G. The death attitude profile revised: a multidimensional measure of attitudes towards death. In: Neimeyer RA. Death Anxiety Handbook: Research, Instrumentation, and Application. USA: Taylor & Francis; 1994. p. 121-48.
  27. Arabi SM, Boodlaie H. Phenomenology Research Strategy. Quarterly Journal of Methodology of Social Sciences and Humanities 2011; 17(68):31-58. [In Persian].
  28. Jung CG. Man and His Symbols. Spain: Anchor Press; 1964.
  29. Jong J, Ross R, Philip T, Chang SH, Simons N, Halberstadt J. The religious correlates of death anxiety: a systematic review and metaanalysis. Religion, Brain & Behavior 2017; 8(1):P4-20. doi:10.1080/2153599X.2016.1238844.
  30. Rajabi GH, Bahrani M. Item factor analysis of the death anxiety scale. Journal of Psychology 2014; 20(5):331-44. [In Persian].
  31. Becker E. The Denial of Death. USA: Free Press; 1997.
Journal of Qualitative Research in Health Sciences

Volume 9, Issue 3
Autumn 2020
Pages 229-238

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History

  • Receive Date: 09 February 2019
  • Accept Date: 14 September 2019

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