Journal of Qualitative Research in Health Sciences

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Caregiving for Patients with Chronic Diseases: The Process of Caregiver Empowerment

Document Type : Review Article

Authors

1 Department of Community Health and Geriatric Nursing, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran

2 Community Based Participatory Research Center, Tehran University of Medical Sciences, Tehran, Iran

3 Nursing Care Research Center, Semnan University of Medical Sciences, Semnan, Iran

4 School of Nursing and Midwifery, Semnan University of Medical Sciences, Semnan, Iran

5 Malaysian Research Institute on Ageing, Malaysia and Emeritus Professor, University of Nottingham Malaysia, Selangor, Malaysia

6 Department of Nursing Management, School of Nursing & Midwifery, Tehran University of Medical Sciences, Tehran, Iran

7 Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran

8 Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, Isfahan, Iran

10.34172/jqr.1324

Abstract

Background: Family caregivers often provide non-professional care to family members with chronic diseases, requiring assistance with daily living activities. Caregivers typically experience significant stress, including physical, psychological, and emotional burdens, as well as social isolation associated with long-term care provision. As caregivers often do not have a role in care-related decisions, their stress levels can increase substantially. Empowerment of caregivers is essential to enable informed decision-making in care-related issues, thereby enhancing patient care outcomes and ameliorating caregiver stress. Accordingly, this study aimed to define and describe the features of the empowerment process for family caregivers providing care to patients with chronic diseases.
Methods: This study was conducted using Walker and Avant’s concept analysis method. A total of 33 articles published from 2008 to 2024 focusing on family caregiver empowerment in chronic disease contexts were selected from CINAHL, PubMed, Scopus, and Google Scholar databases.
Results: Key attributes identified in the family caregiver empowerment process included support for care recipients, constructive relationships with others, knowledge, skills, and an improved sense of positive feelings. Understanding caregiver needs is crucial for public policymakers, healthcare providers, and families in improving care quality and promoting the health of the family, self-reliance, adherence, and patient care outcomes.
Conclusion: Clarifying the components of this concept will assist healthcare service providers to design and implement appropriate intervention programs, including support systems that enhance family caregivers’ empowerment in their caregiving roles.

Keywords

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Journal of Qualitative Research in Health Sciences
Volume 14
Pages 1-8
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History
  • Receive Date: 24 August 2023
  • Revise Date: 31 August 2024
  • Accept Date: 14 September 2024
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