Document Type : Original Article
Authors
- Leila Rafiee-vardanjani 1
- Narges Arsalani 2
- Farahnaz Mohammadi-Shahboulaghi 3
- Kian Norouzi Tabrizi 4
1 1. Student research committee, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran. https://orcid.org/0000-0002-8310-7780. 2. Department of Adults and Geriatric Nursing, School of Nursing and Midwifery,Shahrekord
2 Department of Nursing, Iranian Research Center on Aging, School of Behavioral Sciences and Mental Health, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
3 3. Department of Nursing, Iranian Research Center on Aging, School of Behavioral Sciences and Mental Health, University of Social Welfare and Rehabilitation Sciences, Tehran. https://orcid.org/0000-0001-8357-0882.
4 3. Department of Nursing, Iranian Research Center on Aging, School of Behavioral Sciences and Mental Health, University of Social Welfare and Rehabilitation Sciences, Tehran. https://orcid.org/0000-0001-7439-6691.
Abstract
Background: This study aimed to investigate the specific role of non-governmental organizations (NGOs) in enhancing self-management among hemodialysis patients in Iran.
Methods: This qualitative study employed a conventional content analysis approach guided by Graneheim and Lundman’s framework. The sample comprised 17 participants, including five hemodialysis patients, five nurses, four family caregivers, and three NGO members. Participants were recruited from Shahid Hasheminejad Hospital in Tehran and Hajar Hospital in Shahrekord, Iran, using purposive sampling to ensure a diverse range of perspectives.
Results: Data analysis revealed six key categories related to NGO support: (1) Financial and material assistance (e.g., medication, equipment, treatment costs); (2) Emotional and psychological support (e.g., counseling, support groups); (3) Education and awareness (e.g., disease management, nutrition); (4) Social support services (e.g., transportation, assistance with daily tasks); (5) Recreational and social activities (e.g., social events, cultural programs); and (6) Support for kidney transplantation (e.g., financial assistance, donor-recipient matching).
Conclusion: NGOs significantly contribute to improving self-management and quality of life for hemodialysis patients in Iran. However, challenges remain regarding accessibility, sustainability, and integrating these services into the existing healthcare system. Enhanced collaboration among NGOs, healthcare providers, and the government is crucial to ensure equitable access to these vital support services and improve patient outcomes. Future research should evaluate the long-term impacts of these interventions and explore strategies for scaling and sustaining NGO-driven support programs.
Keywords
)