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The Lived Experience of Patients with Brain Tumors Following a Positive Diagnosis: A Phenomenological Study

Document Type : Original Article

Authors

1 Students Research Committee, Hamadan University of Medical Sciences, Hamadan, Iran

2 Department of Operating Room, School of Paramedicine, Hamadan University of Medical Sciences, Hamadan, Iran

10.34172/jqr.1565

Abstract

Introduction: Brain tumors, as a life-threatening diagnosis, often lead to profound psychological and existential crises. Understanding the lived experiences of these patients is crucial for providing holistic care. This study explored the lived experiences of patients with brain tumors following a positive diagnosis.
Methods: This qualitative study employed a descriptive phenomenological approach. Participants were purposefully selected based on their experiences, and data were collected through in-depth, semi-structured interviews with 12 patients at Besat Educational Hospital in Hamadan, Iran. Data analysis was conducted using Colaizzi’s seven-step method to ensure a rigorous and systematic exploration of participants’ experiences.
Results: The analysis revealed four main themes: (1) Emotional Storm (shock, anger, anxiety, sorrow, and depression), (2) Psychophysical Transformations (physical deterioration, identity crisis, and personality changes), (3) Social Disintegration (self-imposed isolation, shifting roles, and social stigma), and (4) Adaptation to the Illness (hope-fear confrontation, seeking life’s meaning, gradual acceptance, and coping strategies).
Conclusion: The findings highlight the severe psychological and social challenges faced by patients with brain tumors following a positive diagnosis. These experiences underscore the need for comprehensive, culturally sensitive interventions that address emotional, psychological, and social dimensions. Healthcare systems should prioritize patient-centered care, including counseling, support groups, and public education to reduce stigma.

Keywords

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Journal of Qualitative Research in Health Sciences
Volume 15
Pages 1-9
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History
  • Receive Date: 15 March 2025
  • Revise Date: 12 June 2025
  • Accept Date: 20 September 2025
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