Journal of Qualitative Research in Health Sciences

Document Type : Original Article

Authors

1 Research Center for Nursing and Midwifery Care, Comprehensive Research Institute for Maternal and Child Health, Department of Midwifery, School of Nursing and Midwifery, Shahid Sadoughi University of Medical Sciences, Yazd, Iran

2 Center for Healthcare Data Modeling, Departments of Biostatistics and Epidemiology, School of Public Health, Shahid Sadoughi University of Medical Sciences, Yazd, Iran

3 School of Public Health, Lorestan University of Medical Sciences, Khorramabad, Iran

4 Clinical Research Development Center, Khorramabad Ashayer Hospital, Khorramabad, Iran

5 Department of Surgery, Faculty of Medicine, Kerman University of Medical Sciences, Kerman, Iran

6 Clinical Research Development Unit, Shahid Bahonar Hospital, Kerman University of Medical Sciences, Kerman, Iran

10.34172/jqr.1577

Abstract

Background: Parents play a crucial role in caring for infants who are suspected or infected with COVID-19. Emotional and psychological support, along with effective communication between medical staff and parents, can greatly influence the infant’s recovery. Despite its significance, few qualitative phenomenological studies in Iran have examined this experience. This study aimed to explore parents’ lived experiences during the caregiving process.
Methods: A descriptive phenomenological approach was employed. In 2022, eight parents were selected through purposive sampling from Shahid Sadoughi Hospital, Yazd, Iran—the regional COVID-19 referral center. Data were collected through in-depth, semi-structured interviews, which continued until data saturation was reached. The interviews were transcribed verbatim and analyzed using Colaizzi’s seven-step method with the assistance of MAXQDA software (version 18).
Results: Four key themes emerged from the data: 1-) Suspended Between Fear and Hope — an emotional state characterized by oscillation between dread and fragile optimism; 2-) Disrupted Parental Identity and Embodied Anxiety — marked by the loss of the caregiving role and physical signs of psychological distress; 3-) Existential Loneliness and Search for Meaning — involving deep spiritual and emotional isolation alongside reflective meaning-making; and 4-) Deep Responsibility as Transformative Meaning — representing an internalized caregiving commitment that promotes resilience and personal growth. Additionally, economic vulnerability and relational dynamics with healthcare providers were closely linked to these core experiences.
Conclusion: The findings highlight the complex and deeply felt aspects of parenting an infant during the COVID-19 crisis. They emphasize the urgent need for comprehensive healthcare support that addresses not only medical needs but also the emotional, existential, and socioeconomic challenges faced by parents in such times.

Highlights

Fatemeh Doost-Mohammadi (PubMed) (Google Scholar)

Keywords

  1. Zhu N, Zhang D, Wang W, Li X, Yang B, Song J, et al. A novel coronavirus from patients with pneumonia in China, 2019. N Engl J Med. 2020;382(8):727-33. doi: 10.1056/ NEJMoa2001017
  2. Rahimzadeh G, Ekrami Noghabi M, Kadkhodaei Elyaderani F, Navaeifar MR, Enayati AA, Manafi Anari A, et al. COVID-19 infection in Iranian children: a case series of 9 patients. J Pediatr Rev. 2020;8(2):139-44. doi: 10.32598/jpr.8.2.139
  3. World Health Organization (WHO). Rational Use of Personal Protective Equipment (PPE) for Coronavirus Disease (COVID-19): Interim Guidance, 19 March 2020. Geneva: WHO; 2020.
  4. Kallem VR, Sharma D. COVID-19 in neonates. J Matern Fetal Neonatal Med. 2022;35(8):1610-8. doi: 10.1080/14767058.2020.1759542
  5. Barton N, Hall C, Risko J. The lived experience of a NICU father: a descriptive phenomenological study. J Neonatal Nurs. 2021;27(3):206-10. doi: 10.1016/j.jnn.2020.09.003
  6. Morrow R, Rodriguez A, King N. Colaizzi’s descriptive phenomenological method. Psychologist. 2015;28(8):643-4.
  7. Cimolai N. COVID-19 among infants: key clinical features and remaining controversies. Clin Exp Pediatr. 2024;67(1):1- 16. doi: 10.3345/cep.2023.00794
  8. Dong Y, Mo X, Hu Y, Qi X, Jiang F, Jiang Z, et al. Epidemiology of COVID-19 among children in China. Pediatrics. 2020;145(6):e20200702. doi: 10.1542/peds.2020-0702
  9. Jiang Q, Feldman N, Koire A, Ma C, Mittal L, Lin HC, et al. Infant neurodevelopment during the COVID-19 pandemic: associations with maternal pandemic-related experiences, parenting stress, and self-efficacy. Early Hum Dev. 2024;193:106018. doi: 10.1016/j.earlhumdev.2024.106018
  10. Fendel A, Fuschlberger T, Friedmann A, Nehring I, Krüger M, Mall V, et al. Psychosocial stress factors in families with preterm infants during the COVID-19 pandemic: a cross-sectional study. Child Adolesc Psychiatry Ment Health. 2025;19(1):41. doi: 10.1186/s13034-025-00890-9
  11. Greally S, Oute J, McPherson S. Experiences of parents of children with mental illnesses: a systematic review and meta-ethnographic synthesis. Fam Process. 2025;64(1):e13087. doi: 10.1111/famp.13087
  12. Spinelli M, Lionetti F, Pastore M, Fasolo M. Parents’ stress and children’s psychological problems in families facing the COVID-19 outbreak in Italy. Front Psychol. 2020;11:1713. doi: 10.3389/fpsyg.2020.01713
  13. Fan J, Zhou M, Wei L, Fu L, Zhang X, Shi Y. A qualitative study on the psychological needs of hospitalized newborns’ parents during COVID-19 outbreak in China. Iran J Pediatr. 2020;30(2):e102748. doi: 10.5812/ijp.102748
  14. Firouzkouhi M, Kako M, Alimohammadi N, Arbabi-Sarjou A, Nouraei T, Abdollahimohammad A. Lived experiences of COVID-19 patients with pulmonary involvement: a hermeneutic phenomenology. Clin Nurs Res. 2022;31(4):747- 57. doi: 10.1177/10547738221078898
  15. Creswell JW, Poth CN. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. SAGE Publications; 2017.
  16. Colaizzi PF. Psychological research as the phenomenologist views it. In: Valle RS, King M, eds. Existential-Phenomenological Alternatives for Psychology. New York: Oxford University Press; 1978. p. 48-71.
  17. Wanda D, Yayah Y, Hayati H, Nurhaeni N. Mothers’ experiences in caring for children diagnosed with COVID-19: a phenomenological study. J Keperawatan Soedirman. 2024;19(2):78-84. doi: 10.20884/1.jks.2024.19.2.9891
  18. Hosseinzadeh Younesi E, Sabzi Z, Brojerdi M, Kolagari S. The experiences of family members of COVID-19 patients in Iran: a qualitative study. Ethiop J Health Sci. 2021;31(6):1099-108. doi: 10.4314/ejhs.v31i6.4
  19. Asgari M, Choubdari A, Skandari H. Exploring the life experiences of people with coronavirus disease in personal, family and social relationships and strategies to prevent and control the psychological effects. Counseling Culture and Psycotherapy. 2021;12(45):33-52. doi: 10.22054/ qccpc.2020.53244.2453
  20. Shanmugam K, Venkatesan S, Ramalingam S, Thangaraj P. Experiences of hospitalized patients with COVID-19 - a single centre qualitative study. J Family Med Prim Care. 2023;12(9):2154-60. doi: 10.4103/jfmpc.jfmpc_902_23
  21. Louie-Poon S, Reid K, Appiah PO, Hartling L, Scott SD. “There is a strangeness in this disease”: a qualitative study of parents’ experiences caring for a child diagnosed with COVID-19. PLoS One. 2024;19(4):e0300146. doi: 10.1371/journal. pone.0300146
  22. Rahmatinejad P, Yazdi M, Khosravi Z, Shahi Sadrabadi F. Lived experience of patients with coronavirus (COVID-19): a phenomenological study. J Res Psychol Health. 2020;14(1):71- 86. doi: 10.52547/rph.14.1.71
  23. Abela KM, Wardell D, Rozmus C, LoBiondo-Wood G. Impact of pediatric critical illness and injury on families: an updated systematic review. J Pediatr Nurs. 2020;51:21-31. doi: 10.1016/j.pedn.2019.10.013
  24. Bembich S, Tripani A, Mastromarino S, Di Risio G, Castelpietra E, Risso FM. Parents experiencing NICU visit restrictions due to COVID-19 pandemic. Acta Paediatr. 2021;110(3):940-1. doi: 10.1111/apa.15620
  25. O’Toole S, Suarez C, Adair P, McAleese A, Willis S, McCormack D. A systematic review of the factors associated with post-traumatic growth in parents following admission of their child to the intensive care unit. J Clin Psychol Med Settings. 2022;29(3):509-37. doi: 10.1007/s10880-022-09880-x
  26. Murphy MA, Annunziato RA. Post-traumatic growth among pediatric transplant recipients and their caregivers: a scoping review. Pediatr Transplant. 2024;28(3):e14726. doi: 10.1111/ petr.14726