Document Type : Original Article
Authors
1 Department of Social Work, Social Welfare Management Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
2 University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
3 Department of Mental Health, School of Behavioral Sciences and Mental Health (Tehran Institute of Psychiatry), Iran University of Medical Sciences, Tehran, Iran
Abstract
Introduction: A child’s illness profoundly impacts the psychological well-being and social functioning of the entire family, often creating a crisis that disrupts established family dynamics. Understanding the psychosocial experiences of families with children who have undergone heart transplantation (HT) is essential for improving health, educational, therapeutic, and supportive services. Such understanding can also inform public health policies and planning aimed at enhancing the quality of life and overall well-being of these families.
Methods: This qualitative study employed a content analysis approach. Data were collected through semi-structured interviews with 17 participants, including parents of heart transplant children and key professionals involved in their treatment process and care. Purposeful sampling with maximum variation and according to inclusion and exclusion criteria was used. The sampling process was continued until data saturation reached. The rigor of the data were ensured through systematic coding and theme classification
Results: Thematic analysis of the data generated 26 sub-themes, which were subsequently consolidated into six overarching themes. These major themes were identified as: 1) family distress, 2) Family functioning disruption, 3) Therapeutic and Care Complexity, 4) Uncertainty about the future, 5) Insufficient social support, and 6) Effective coping strategies.
Conclusion: This study revealed six key themes reflecting the multifaceted challenges experienced by families of pediatric heart transplant recipients. The findings have important implications for clinical practice and policy, emphasizing the need for targeted psychosocial interventions, improved allocation of social and healthcare resources, and heightened public awareness to support family resilience and optimize patient outcomes
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